For CRIP, data is de-personalized in three steps ( CRIP Privacy Regime
- For CRIP, only pseudonymized data is processed at the partner institutes.
- For export towards the central CRIP database, data is anonymized by the CRIP software.
- As search result, only the number of cases ("pool") fulfilling the scientist’s search query is displayed, in other words: Results are represented as statistical groups.
Through this regime, the privacy of sample donors as well as biobank autonomy and biobanks‘ and users‘ confidentiality are efficiently protected.